Lilly is doing very well. She saw the pediatrician this week and her pulmonologist that we first met at Richland. Both visits went great. Her lungs are clear and all of her blood tests came back normal. The final diagnosis on her illness was viral pneumonia which hit her especially hard since she does have a VSD. Dr. Brown, the lung specialist, said that he is not certain whether she has asthma or not. He said once her VSD is repaired, her lung issues may be resolved as well. We certainly hope and pray that this will be the case. Next week, we see our regular pediatrician, Dr. Macpherson and the cardiologist. We hope to have her VSD surgery in July at MUSC.
As you can see from the pictures, we have finally captured some smiles. Lilly is such a happy baby. She laughs and smiles all the time. She loves to point at things, to roll her tongue and make all sorts of funny noises. She loves to walk but must have one of your fingers in each hand or she stops walking. All of her siblings adore her. Ethan is not to sure of having to share his toys, but he likes her being the baby because he will tell you emphatically that he is NOT a baby.
We are really enjoying having Lilly in our family and can't imagine life without her. She is like a little bit of sunshine that brightens our home and our family. We are so thankful that God called us to adopt from China and that He led us to her. Again thank you for your prayers for this precious little girl. She is definitely a fighter because she has been through SO much and yet she smiles and laughs so often!! We are so blessed to be her parents.
4 comments:
Great to see the newest pictures of Lilly!! She is a doll. Glad she is well and that you can set her up for surgery soon. What a blessing your family is.
So great to see Lilly tonight. She is so beautiful and blessed to be a part of such a caring family. Praise God for all of the great news from her doctors. I will continue to pray for her little heart. All of the "Barbee" family are anxious to meet her one day.
May God Bless You as You Love your little miracle...
Julie Svenson
(Lainie's Aunt Juju)
I am so glad to hear that things are going great. Lilly looks very happy. It is really amazing to see first hand with Lainie how they adjust day-by-day. Lainie needs two fingers to walk too! They are so much alike. Let us know when the surgery is and we will pray for her as we are continuing to do!
Crystal Moore
Jan and David, I have been following your journey and praying for Lilly. So glad to see she is home with you all and is happy and healthy. Please let me know when you'll be in Charleston for the surgery....May God continue to bless your family. Love, Jennifer
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